Update #102

Hello and Merry Christmas!

Remember on my last post I said something about this being a very different Christmas for us...

On Christmas Eve near midnight, while helping Steve stand up, I managed to pull his feeding tube OUT. He said something like, "Ow, that hurt a little" and I said something like, "Gosh, what did I do?" :)

We got on the phone hoping to find someplace close that could put a new one in, but only UofM used that type of tube, so off to the emergency room we went. Spent the night there while they tried to convince someone from radiology to do the procedure, but no luck. Rob and Beth headed for home early Christmas morning and Steve and I stayed while they tried to talk the morning crew into it, but weren't able to make it happen. So they admitted him, and we spent Christmas at UofM. That was the bad news. The good news was that the four of us were together, the procedure went without incident, Steve has another chapter for his book, and we met some outstanding medical people who tried everything to make things happen faster for us and gave us excellent care. We even ran into Laura, who was Steve's speech therapist (her husband was also having a procedure in radiology) so we got to visit with her. In any case, we're home now and all is well!

We hope all of you had a wonderful and peaceful Christmas! Take care of yourselves and each other.

Love,
Linda

Update #101 from Linda

Hi! Hope all is well.

Rob is helping Steve get his day started, so I thought I'd write a little update.

Things are rolling along here. We have our Christmas tree up and our house is as decorated as it's going to get! Rob still thinks we'll get lights on our gigantic evergreen in the front yard, but it's just too cold out, never mind the fact that it takes hours to do it! We always cut a tree down, and Steve is famous for choosing one that won't fit in our house. :) This year we went to a place we've gone to before, but chose one they had already cut. He was fine with that, and we figured it was a nice solution. Beth was home yesterday and we decorated it. Beautiful.

Little things happen that remind us that progress is always being made. Yesterday Steve "scratched" some instant lottery tickets and removed all of the coating. In the past he'd make a few scratches and think it was done. I know that doesn't sound like much, but it's all good stuff. We also play Rummikub and Battleship often, and it's so obvious from playing them that his "left side neglect" issue is always improving. Every so often, Gail and Grams play Poker with Steve. He hasn't lost his touch for bluffing as they will attest!

I'm off work for two weeks now, and am so thankful to have this time at home, and the chance to go to therapy. On Monday Steve will see a different speech therapist and we're hoping for some good ideas from her. Prayers, please! During this time we're also hoping to take him to a gym (thanks, Jennie!) to try some of the equipment there. Rob has been talking to his PT about creating a table to have at home for stretching, so we're hoping to get started on that as well.

This will be a very different Christmas for us, but one that we are so thankful to be celebrating. As always we think of, and are so grateful for, all the people who have helped get Steve to this point. Blessings to all of you! Have a wonderful Christmas.

Love,
Linda

Update #100 from Linda

Hello! I hope life is good for all of you, and that you all had a nice Thanksgiving.

We took Steve to Muskegon after having a great dinner on Thanksgiving, stayed in a hotel, and spent the next afternoon at Aunt Jean's house visiting with lots of aunts, uncles, and cousins. Steve has such a connection to those people and that part of the state...it was wonderful therapy for him (and us!). We did a little driving around to see some familiar places, scooped up a bag of beach sand, spent the night at the hotel, and drove home Saturday. Such a nice time.

We are so often reminded that Steve has wonderful friends. People that stay in touch, include him in things, and take time out of busy schedules for him. You know who you are, and we thank you for that. So does Steve.

We're often asked about communicating with Steve. Please know that he reads all of your text messages, but doesn't always respond. He keeps his phone handy and checks it often, so please keep those messages coming! He truly looks forward to them. As far as email goes, he gets on his computer every few days, but usually needs help reading those notes. It might be a vision issue...not sure. You might want to keep them short and know that he loves to get them, but probably won't respond. I realize this makes things a little one-sided, but thanks for your understanding. You just can't IMAGINE how important contact with his friends is to him.

We are in the process of ordering a portable communication device for him to try. It's something that allows him to type messages using an on-screen keyboard, push a button, and the message is read out loud (by a voice named "Mike"!). This will give him the chance to hear his words said out loud, and he seems to like that. It will also give him the chance to "talk" on the phone, although the process is very slow. The other thing they think it will do is allow him to repeat these messages himself, which will hopefully help with his speaking. We're hoping to have this in a few weeks.

Last night Rob brought us a drink from Starbucks...Steve had his favorite white chocolate mocha with skim milk :) and drank the entire thing. We were remembering the first time he had one during the summer and managed about a teaspoon or two of it. This time he took the top off the cup and slurped every drop with a straw! Sometimes it's easy to lose sight of the progress he's making, and then a little thing like that happens to remind us.

We're asking for prayers for "Matt" who is a good friend of one of Steve's very good friends. He visited Steve in the hospital and compared scars and stories with him. He's facing very serious new health challenges now...please send energy and prayers to him. Thanks.

As always, thanks for EVERYTHING. Stay warm and take care of yourselves and each other!

Love,
Linda

Update #99 from Linda

Hello! I hope life is good for all of you.

Things here are busy but fine. We're falling into a routine and getting things done. Probably the biggest progress we see right now is in Steve's eating, and that's most likely because we have the time and patience to let him eat at his own pace. Meals can take hours, but who cares? It's a huge improvement in the quality of his life.

Speech continues to be challenging. The quieter environment here and a different style of speech therapy, among other things, might be contributing. Something to work on. Sometimes he surprises us with the things he says, though. For instance, last night we went for a ride for ice cream and then to Kensington Park. When we got home, he said to me, "You know Darlene from therapy? She takes her dog to the horse trail at Kensington. I guess you can let them run there. I can't imagine what Nyah would do with a horse!" It took quite awhile for that to be said, and some repeating and air spelling, but he made his point! At other times, though, it's a struggle to say just a few words. On December 1st, they're getting Steve a device that might help him communicate; it was tried in the hospital but not successful there; they want to give it a try now that he's home. The thought is that he's "all there" as far as thinking, memory, humor, etc. goes, and they want him to be able to express what's on his mind more quickly and easily. The device also provides a voice for the things he types.

We're taking Steve to Muskegon this week to visit with some of our relatives there. One of his favorite places and some of his favorite people...he can't wait. Neither can we. We'll be gone all day Friday, and Saturday morning. If anyone would like to visit this weekend, we'll be home Saturday afternoon and Sunday...please stop by! We'd love to see you.

We are thinking of our many blessings this Thanksgiving and count you among them. We hope you have a wonderful holiday. Take care of yourselves and each other.

Love,
Linda

Update #98 from Rob and Linda

Hello! Sorry to all who read this blog for the delays in updating...our days are hectic! Although we are VERY glad Steve is home, we never realized how easy it was to get Steve to rehab when he was "in-patient" so to speak.

We rarely use the wheelchair now, but walk with Steve to and from the car, at home, and at Re-hab. This takes a bit longer than simply loading him in the chair and pushing him down the hall to the elevators. The fact that our drive is 40 miles one-way requires much more planning each day. We are on the go from 9AM when Steve wakes to 5 PM when we get home with him. We are really grateful that our re-hab appointments are in the afternoon, and that he has Fridays "off."

We were excited that it was time for Steve to try the Lokomat machine at re-hab. The machine is designed to monitor what a person's muscles are doing when walking, and then can tailor treatment to specific areas to strengthen the weak muscles. Steve was uncomfortable so we had to cut the use short after only 15 minutes. It seems the harness catches him and causes discomfort. We are re-thinking the type of clothing he will wear the next time. He's scheduled to use this machine again next Wednesday.

Speech is still very weak; we have some exercises to help him improve this, and may put you to work when you visit! He told Beth it's like having a dream when you need to call out for help and you can't, so we know he's anxious to make improvements. They are going to get him a device that will speak for him, but have reassured us that this is only temporary. Part of speech therapy is analyzing his memory, ability to do logic problems, math, predicting, etc. etc. and he routinely scores 100% or close to it on all tests. He has lots on his mind that he'd like to share, and the thought is that this device will reduce that frustration. Also, Steve wants to try it, and one of our goals is to give him more ownership of his therapy. Swallowing is still an issue, and he continues to eat very slowly, but this is improving. He is up to 182 lbs and we may now have to think seriously of curtailing how much he eats!


I don't know about Lin, but there are times I get a little impatient waiting for Steve to get better. Improvements seem to come more slowly now; the major, more dramatic accomplishments may have already happened. But when you think about it, this is not about us, but about Steve. He will get better at his own pace, and do things on his own agenda, just like before the accident. As the doctors in Bethesda said, "this is a marathon not a sprint."

That said, when I watched him wash his hands today, he reached up and shut off the water faucet with his left hand. He continued to do this all day like there was never a concern. Just amazing!!!

We also increased his anti-seizure medication today and so far there are no issues.



OK, this is from Linda. I am not as close to the daily therapy sessions as Rob is, so my perspective is different. I took him Thursday and watched as he stood up many times unaided after sitting on a table in PT. Then the therapist sat on a stool facing Steve with his right hand in the air. Steve pushed down on it with his left hand and walked around the gym that way (while the therapist, Andy, scooted backwards on the stool) with no other support. Rob sees this every day, but to me it was breathtaking!



Often Steve's friends write him notes asking how they can visit him. You are always more than welcome at our home! There is also the possibility of meeting you someplace else if that works better for you. For example, some of Steve's friends are meeting him tomorrow to see a movie. It is SO good for him to see his friends, even if it's for just a quick visit. You can call me (Linda) at 248-568-6091 or email me at lindapercha@gmail.com to check on our schedule and yours. You may wonder what to expect when visiting him...know that he's "all there" mentally and understands everything that goes on. His memory, humor, etc. are all intact. He loves to hear your stories and jokes! What challenges him are things like talking and walking, but we are always there with him and he has other ways to communicate.

As always, thank you for your continued thoughts and prayers. We hope all is well with all of you! Take care.

Love,
Rob and Linda

Update #97 from Rob and Linda

Happy Halloween to you all. We didn't pass out candy this year, as the doorbell ringing sends the dog into barking hysterics, which startles Steve. Despite the fact that our lights were off, several groups of kids rang the bell and we wound up with a plate of spagetti launched in the family room! Nothing to do but laugh about it!

It hardly seems like 10 days since the last update and 21 since Steve came home. We are starting to get into a routine and it feels good to do the same thing the same way, more than once. As Lin mentioned, Steve and I travel to Med-Rehab in Ann Arbor Monday thru Thursday for therapy. We are trying to get him to see Speech, OT and PT for an hour each day 4X per week. He was getting 90 minutes of OT and PT per day in the hospital, but that was split up into two 45 minute sessions before and after lunch. We have asked to keep our appointments in the afternoon with the winter coming up. Thankfully, Beth lives in Ann Arbor, so we might invade her if the weather gets bad!

Trying to get the needed supplies is also a daunting task, but so far so good. You really don't realize how easy it was in the hospital, until you leave.

We have great therapists, and as before, they seem to have taken a special interest in Steve. We are seeing more spontaneous use of the left hand and arm. In PT we are seeing that a walking machine that Steve could not use before, works well now that he has some strength in the left arm. The task is to get Steve to keep his feet from crossing in front of each other. This usually happens when he gets tired.

We plan to start short therapy sessions at home so we can keep Steve "in shape" so to speak. Getting more involved in Steve's therapy will be good for us all. If you'd like to help out with this, please let us know. :) It can be as simple, but important, as having him say words to complete sentences.

Our home design is also helping strengthen Steve's legs. Being a Quad Level, we have added railings to both sides of each stairway and Steve has little problem getting up and down with one of us standing with him. This will only get better as he gains more strength on the left side.

Steve seems so rested to us since leaving the hospital. A dark, quiet room works wonders! He gets about 10 hours of sleep every night. We have also started giving him small doses (which will be slowly increased) of a different anti-seizure medicine, which his neurologist wanted him on. It took us days to get up the courage to actually give it to him, but haven't noticed any side effects. We think timing is everything, and make sure he gets it after tube feeds.

We are thankful for everyone who comes by to see Steve at home, as well as the countless others who send energy, prayers, emails, cards, meals, etc. We treasure you all! Beth keeps Steve supplied with Sudoku puzzles and chocolate chip cookies, which just cracks us up, as he never used to eat junk food!

Please continue to keep Steve in your thoughts and prayers. We're also asking for your prayers for a teacher at the high school Beth and Steve attended. He fell while hunting last weekend and suffered an injury to his spine (neck). He was airlifted to UofM Hospital and is in the ICU there. His family reports that he has been able to breathe on his own for up to 36 minutes, and that he now has some feeling in his upper arms. We don't know him, but this hits a little too close to home. We know what miracles you have worked for Steve, so please keep "Kirk" in your thoughts.

Have a wonderful weekend, everyone! We're taking Steve for his first "official" haircut in a long time, and hoping to enjoy the beautiful weather and maybe see a movie. :)

Thanks,
Rob and Linda

update #96 from Linda

Hello! We hope all is well with all of you!


Things are good. Rob and Steve head to Ann Arbor every weekday afternoon for therapy and say they're enjoying the ride and are impressed with the therapists. Before Steve left the hospital they botoxed his left arm, and we have noticed good things with that since arriving home. For example, when he washes his hands, he can lift his hand from his side to the height of the sink, rub his hands together a little bit, and is starting to reach his left in the direction of the towel to dry it.


Steve and I shopped the other day for a recliner for him, since the one in our family room was pretty uncomfortable. We chose one that didn't look too huge in the store, but almost gave Rob a heart attack trying to get it down the stairs. It's gigantic, but has good back and leg support for Steve. We have a little space heater in that corner, so he's pretty cozy. Right now he's sitting there eating ice cream and fighting Rob for control of the remote!


I asked Steve if there was anything he'd like to say about being home, and he wanted to mention that he's enjoying the food! He is still relying on tube feeding with "regular" food in small amounts for pleasure. We put a high-backed desk chair (on wheels) in the kitchen, and he uses that to sit at the table. It works out great, keeps him sitting up nice and straight, and he can use it to scoot around a bit, too. Can't tell you how nice it is to see him sitting at the kitchen table reading the newspaper and having breakfast!


I have taken over Laura's job of nagging him about using his voice, and many days he does a good job. I try to call him on the phone every day so that he has the challenge to talk to me in that way. A friend, and speech therapist for our school district, has offered to come meet with Steve and give us some pointers. :) We are looking forward to that opportunity...thanks, Carol!


This is a new version of "busy" but such a good one. I asked Steve if he missed being in the hospital and I'm sure he would have slugged me if he could! So many people have played a part in getting him to this point...we thank you for that from the bottom of our hearts.

Take care everyone!

Love,
Linda

update #95 from Linda and Rob

Hello! Whew!!

We are home, and getting all settled in. Equipment was delivered, bags of supplies all over the house, prescriptions on the counter...it has taken us a few days to figure out where to put things and how to organize our life.

Right now Steve is napping on the couch. We put his hospital bed in Beth's room, and he is getting caught up on sleep. I sleep in there (on Beth's bed) until I get up for work, then Rob moves in and he and Steve get a couple more hours. We are coordinating tube feeding and water through the night, and getting a schedule in place. Some of the equipment is a little different from that in the hospital, so we're getting used to it slowly but surely! We're also improvising (like using a coat tree to hold gravity bags!) which makes life interesting. :)

It is so good to have him here. That says it all.

Steve's therapy schedule is falling into place. He's going to a facility in Ann Arbor, which was recommended to us by people at the hospital. A long ride, but so far so good! They're trying to schedule everything in the afternoon, which is better for both Rob and Steve.

One "glitch" was that he had a seizure Saturday morning, definitely not as bad as the first, but a seizure none-the-less. Rob and I helped him ride it out, and he is fine. Had a few minutes where his short term memory was not working, but it quickly came back. We stayed calm through everything, and never doubted that he would be OK. As his neurologist told us, seizures are a symptom of brain damage, but do not cause it. She is going to put him on a different anti-seizure med, which is unfortunate, but we trust her judgement.

We're so thankful that Steve has moved to this new chapter. He has a lot of work ahead, but we know he's up to it. Thanks for your continued support, prayers and energy!

Love,
Linda and Rob

HOME!

After 8 months...Steve comes home this Friday. :) :) :)

We are trying to think of ways to thank the hospital staff and would appreciate your ideas. You can post them here or email me at lindapercha@gmail.com

Thanks so much!

Love,
Linda

update #94 from Linda

Hello! I just got home after spending the weekend with Steve, and wanted to tell you about the good things that have been happening!

First of all, we had a great weekend. Uncle Dave and his family, Aunt Gail and Uncle Don, Rachel, and Uncle Rick and Alyssa (from Georgia) all visited. We celebrated Grams' birthday...thanks, Beth and Ed, for sharing your condo!

Some med changes were made late last week...we were hoping this would result in Steve being more alert. This morning he woke up talking and had the best day ever in Speech, despite the fact that it was at 9 AM, which is normally way too early for him. He was able to do lots of talking and also used the loudest voice we've heard since February! So amazing.

His OT (Patrick) continues to work hard with Steve's left hand/arm. He has been trying to use it more lately to do things like turn a faucet on or pull paper towel out of a dispenser or play cards with Grams. He doesn't have the strength yet, but we're excited to see that he's trying so hard to use it. There's a good chance they'll inject botox tomorrow to try to loosen things up and make it easier for him to move his arm.

PT was so much fun today. I told Tim that Steve was doing some serious talking, so we had him go up to Mike and say, "Get to work, Mike!" Mike has been saying for months that he can't wait for Steve to be able to talk and tell him off. It was quite a moment. :) They had Steve walk the parallel bars with lots of obstacles to step over and he did a great job. The highlight, though, was that they had him walk (with a therapist on each side) unaided. He was unsteady and constantly looked like he was going to fall over, but he walked on his own part of the way around the gym, out into and down the hall, and back into the gym. "Amazing" doesn't begin to describe it.

Steve is having a swallow study this Wednesday. At the present time he relies on tube feeding for nutrition, with small amounts of some regular food just for "pleasure." We would love to reverse this situation...please keep him in your thoughts and prayers!

The medical people meet tomorrow to decide if they want to keep Steve there longer, but as of right now his discharge date is Friday. Equipment is being delivered to our house this week (despite the fact that no home modifications have been started yet!), and we meet on Wednesday with someone to learn about the tube feeding system we'll use at home. Also on Wednesday we're meeting with the people at an outpatient rehab facility in Ann Arbor. It's a long drive, but is under the U of M "umbrella" and the therapists at the hospital know the people there and speak highly of them.

Take care, everyone!
Love,
Linda

Update 93 from Rob

Another 5 days go by and I am reminded by Uncle Don that the stuff I am relaying to him is not on the Blog!!

Steve had a so-so week until Friday. We tried moving the AM Keppra dose to Noon, on Thursday, and it seemed to have a positive effect. Friday was the day Steve's soccer skills returned, much to the joy of his PT therapist as well as our family. Previously we tried several ideas as to how to keep his feet from scissoring when he walks, but it turns out all we had to do was let him dribble a soccer ball. I stayed in front of him and would pass the ball back to him if it got too far ahead. He made two laps around the PT gym with minimal assistance. He was keeping his balance and maintaining control of the ball. I challenged him by saying he couldn't kick one past me. Of course he did!!!

We will try other soccer drills and keep doing dribbling for sure.

Saturday we took Steve home for the day. It was nice to see him meet Nyah, our dog, and our neighbors Gerry and Sue. Danielle, just in from Chi-Town, stopped by and made Steve's day. His other good friends, Mike W. and Brent came over as well as Jess, Lindsey and Mike. Aunt Gail and Uncle Don brought over dinner items and we cooked out on the grill. It was the first "normal" day Steve has had in a long time and His smile showed it. We sat and visited and watched Michigan take out Wisconsin. It was a very good day!!

Reducing the Keppra and changing the timing of the dose will allow Steve another chance to excel. That coupled with his sheer will and determination and your thoughts and prayers will make this next week one to remember!

Thanks
Rob

update #92 from Linda

Hi! Just a quick note...

We had a great meeting with a neurologist on Thursday who had taken the time to review all of Steve's files and spent a lot of time with us explaining things about his injury, CAT scans, recovery, etc. We have been hoping that the anti-seizure meds he is on could be reduced, and she agreed with that. We came away from that meeting with a wonderful feeling that we had found the perfect doctor for Steve. I have to tell you that this was the result of Rob being "hyper-vigilant" as one of the nurses has described him! He really pushed for this meeting, made tons of phone calls, emailed, gathered medical records, "rocked some boats"...a huge effort, but paid off big-time. :)

Steve had a nice weekend. Lots of rest, cards with Grandma, Saturday night movie, visits from friends and relatives, and tonight we went to Beth's to watch a movie and bake cookies. Can't tell you how nice that was. Thanks, Beth!

One little thing that happened that was so nice...I was helping Steve stand up in a small area and we would up face to face. It was pretty funny because we were so crowded, and I gave him a hug. He hugged back and we stood like that for some time...I realized that it had been such a long time since that could happen. I know a lot of his friends have commented that they can't wait until they can get a "Steve hug" and I wanted you to know that it won't be long!

Rob has some videos that he wants to post and we'll write more soon. But I just wanted to let you know that good things are happening, and to thank you for all the energy you continue to send his way.

Good night!

Love,
Linda

Update#91.5 from Rob

Hope all is well with you who read this blog!
Just a small update to keep you informed.

This has been an interesting week. Steve's left hand and arm are responding to a mix of electro-stimulation and therapy. Please look at the attached video.

We have finally got through the worst part of his allergies and the weakness we saw earlier has all but gone.

The big news is we finally met with our third neurologist and have a plan. It is a wonder what can happen when you break the rules and go get someone who will take an interest in your son. Steve now has another chance to excel as before and we have already seen small improvements today. We look for good things to happen next week and beyond.

Please keep those positive thoughts and prayers coming his way.

Thanks,
Rob

Update #91 From Rob

Hello Everyone.

Steve has been continuously battling the effects of anti-seizure meds as well as bad allergies and true to his nature, trying to overcome all! The 12th was one of Steve's best days. It is the start of Steve's left hand and arm coming back! Steve was able to bat a balloon back and forth with one of the therapists while standing on a tilt table. He was strapped at the knees to insure against falling forward and was able to direct the balloon back to the thrower. Look for a video soon!.

I was OK watching this, but what really hit me is a little thing that happen previously. Here we are in PT almost 7 months since the accident. Steve is sitting on a mat between Mike, the guy that was throwing the balloon, and me. He is totally upright, his arms are on his thighs, sitting there staring over across the room. I looked over at him and it hit me that if you just walked in, you would never know what he has been through! He looked totally normal, sitting there and smiling! He must have had a great thought or someone, on his mind. For some reason this event turned me into a "blubbering idiot".

Oh well, onward!

We are currently dealing with a new neurologist recommended by Steve's neurosurgeon. She is reviewing medical records and we will consult with her regarding future med use etc...
and, as a relief to our family, Dr. Armonda has asked that she contact him as well. This is a great development, again having his expertise involved!

Steve was invited by Beth to attend a viewing of the movie Casablanca on her new wide screen TV last night. She had several of her friends over and wanted to have her brother there as well. Lin and I dropped him off at the condo and spent a nervous two hours close by at Big Boy. All worries were for naught as Steve had a really good time and actually managed to get down at least one chocolate chip cookie without any problem. Just another attempt at some form of normalcy.

I have noticed postings about visiting on the blog and we want you all to know that Steve loves to have visitors. I would suggest you call first however, as we are often not in the room, and away during the weekend. 248-568-6092(Rob) 248-568-6091(Lin). If you want to chance it, he is on 6A room 111. Seeing him in therapy isn't a problem either, but later in the evening is really better and of course you can always text.

Thank You all for your continued thoughts and prayers,
Rob

update #90 from Linda

Hello! I hope you all had a nice weekend.

Beth's 25th birthday was Saturday...Happy Birthday, Beth! So on Friday we took her out to dinner. Steve gave her a DVD player, which was an interesting gift since she didn't own a TV! We had a great evening. On Saturday we saw a movie ("Traitor"...Steve said it "held his interest all the way through"). Today Steve, Beth, and I went TV shopping :) and then to the mall for lunch and a haircut for Steve. That was lots of transferring in and out of the car, but that is no problem. We're SO thankful that he's comfortable going out and doing things, despite being in a wheelchair.

Allergy season has hit in full force, so we've been working to get him on appropriate meds for that, and also bought an air filter for his room which really seems to help. They did a chest x-ray a couple days ago because of the coughing, but there's no pneumonia...just allergies!

I'm back to work, which means I miss seeing therapy. But Rob and my mom keep me informed, and say that Steve continues to work harder than you can imagine. It shows in his strength and size. He has put on weight and muscles are reappearing. Today he squeezed Don's and Gail's hands (tightly) with his left hand and shocked the heck out of them. :) He did that to me a couple days ago and it took my breath away...just a few weeks ago that hand didn't do much of anything. All amazing, hopeful things. I just watched Danielle's video again. It's such a wonderful reminder of how far he's come in a few months, and doesn't even touch on the early days when we were excited if he could do things like hold his head up!

He has gotten back to texting, so please feel free to communicate with him in that way!

I hope life is good for all of you.

Love,
Linda

Update #89 from Danielle

Hey everyone!!

Things have been very busy lately. As some of you may already know, I have decided to move to Chicago. Almost seven months ago now, these were my original plans and it's been very difficult to follow through. 

I want to take this opportunity, however, to thank every single one of you who still follow this blog and frequently touch base with Steve and his family. Your support throughout this whole process has truly been amazing. 

Even though I may be farther away in distance, Steve will continuously be with me in heart. I look forward to keeping in touch with him and everyone else as much as I possibly can. 

With that said, I had many random little videos of Steve still on my computer and was trying to figure out a way I could make sure everyone got a chance to view them. I figured out how to make short videos on my computer and put one together. Unfortunately, the file is too large to post on the blog so I posted a link to direct you. 

A couple video tips: 

#1: Be prepared and willing to download Quicktime or another viewing source. 

#2: You may want to give the video enough time to load before you play. 

#3: Make sure your sound is on!

#4: If you'd like this video for yourself please press the download button on the link to download onto your own computer. I believe I only have the subscription to the service for 2 months. 

.

http://gallery.me.com/dani0361/100010

.

I hope you enjoy watching this as much as I enjoyed making it. It really is incredible to watch just how fast Steve is improving over such a short amount of time. =) 

All my best,

Danielle

visiting

Hello, everyone! I had a conversation with a friend the other day, and the subject of visiting Steve came up. I just wanted to make sure everyone knows that he loves visitors and everyone is welcome. He has therapy during the day, but not in the evenings. You can usually find us in his room (6111 on 6A) after 5:00. He does need lots of sleep, so we generally ask that you don't stay later than 9:30. :)

In case you're wondering what to expect...
Steve hangs out in his room in the evenings, watches tv, plays board games, etc. He can do some talking and can write anything he needs to, so communication is not a problem! We go no further than a lounge down the hall, so are always available if something comes up. If you'd like to visit and want to call first, our phone numbers are 248-568-6091 (Linda) and 248-568-6092 (Rob).

As far as this weekend goes, we're taking him out on Sunday for the afternoon, but have no other definite times/plans for anything else. Hope you all have a good weekend!

Love,
Linda

Update #88 from Rob

Hope all is well.

Several things have happened since the last update that bear mentioning. First, is that Steve seems to be dealing with the seizure med issue. While we feel He is not yet totally back to where he was before the meds, he is getting noticeably stronger every day. He is walking almost unaided in PT, please see the video,and the therapists in OT, have his left hand and arm doing things they never did since the accident.
Passing the swallow test has unleashed the "eating monster" within Steve and he has forced us to develop a routine so he can fit "pleasure feedings" as the docs call them, in between his therapies during the day.
The docs must have a master plan for Steve as his stay has been uncharacteristically ,extended to OCTOBER 10th.
As Steve's rehabilitation seems to drag on, I fear some may be trying to predict when Steve will fully recover. Please do not waste energy dealing with this. I ask that all who read this Blog reference Uncle Rick's note of August 10th and also the following passage.
One of the Neuro PA's in Bethesda wrote a note on Steve's football, when Steve was in his darkest hours. It dealt with "I AM" and Linda found this when she researched it.
This passage defines our Family and has kept us going. It reads as follows;

I was regretting the past and fearing the future
Suddenly my Lord was speaking
"My name is I AM"

He paused, I waited, He continued,
"When you live in the past with its mistakes and regrets, it is hard.
I am not there. My name is not I WAS.

When you live in the future with its problems and fears, it is hard.
I am not there. My name is not I WILL BE.

When you live in this moment, it is not hard.
I am here, My name is I AM".


.......... it seems so easy to worry about things we cannot change nor predict.
But this video is proof that positive thoughts and prayers, " in this moment" work miracles.





Thanks
Rob

swallow study, etc.

Hi! Thought you'd love to know that Steve did well on the swallow study! He's not cleared on liquids yet, but other things he loves like cereal, scrambled eggs, and mashed potatoes are fine. Such a relief. THANK YOU all for your prayers and energy.

He also had an amazing day in therapy. In PT he walked un-aided with the hemi cane...wobbly, but usually able to keep himself upright even if he stumbled. They also had him walk (with one person's assistance) using a regular cane. He did great with that. I'm guessing it's smaller size gave his feet more room to move. In OT he worked with "Rob" who is a clinical specialist there (the man who knows about the massage technique for Steve's trach site). He had him doing all sorts of things with his left arm, and strengthening his trunk and shoulders. We could see improvements even from AM to PM therapy.

A good day! :)

Love,
Linda

tomorrow

Please send prayers and energy...swallow test is tomorrow morning.

THANKS!

update #87 from Linda

Hello! I hope you had the chance to look at Danielle's videos. Steve is getting stronger every day! We are all walking with him in PT so that we can be cleared to walk with him at other times. He does the walking...we're there to help support his left arm and steady him if needed. They had him standing against a wall on Friday in PT and looking in a mirror to help him see how to keep his shoulders straight. They're also working on stairs and walking in a variety of ways. He walks better just using a gait belt and a person on each side of him, but they also use a cane/walkers to help him learn to walk more independently.

In OT Patrick has been doing lots of work with Steve's left arm and hand. He can open and close it better all the time, and can maneuver it to hold (although not strongly yet) a cup, etc. His shoulders are weak, so lifting his arms is challenging. His right one is coming along, though, which makes it possible to bring food to his mouth or scratch an itch on his head. Depending on the position he's in, he can do this alone or with a little help from us.

He has been tasting a variety of foods...very slowly and carefully...a swallow study is scheduled for Wednesday. Please send positive energy and prayers!

Rob brought Steve home for a couple hours yesterday, then we went to the Dream Cruise. We were there for about six hours...way too much for me, but Rob and Steve loved it! We ran into many of his friends there, then all met up at the end of the day so he could visit with them. He also had visits from friends on several other days this week. It would be so easy for these people to go on with their lives and busy schedules and not find time for Steve, but they don't. We are so thankful for them.

Have a good Sunday everyone!

Love,
Linda

Update #86 from Danielle -Videos

Hey everyone!

I know it's been awhile since I've posted anything....and I apologize for that. I figured it was about that time to 'video update' you all. As Rob mentioned previously, Steve did have a minor set-back when he was introduced to the new seizure medications. It basically made him more relaxed. Fortunately, he seems to have fully adapted to the meds and is continuing to become stronger than ever! In the first video you will notice that he is able to stand up all on his own. You'll also see him using a cane. This is a technique the physical therapists use from time to time to help him stabilize himself. However, you'll see in the second video that Steve seems to speed walk without the cane. There is no doubt that he is vastly improving in more ways than one and he continuously is a joy to be around. :)

Enjoy!

-Danielle

Video 1:

Video 2: (Same day)

A moment to reflect

Good Afternoon Linda, Rob, Beth and Danielle. I know Grams is taking a few days off for a needed break. I wanted to share something with each of you today, but really a story for all of us. There is a guy that I used to work with who follows Steve’s story daily. This guys name is Steve as well. His interest is the fact that his mom went through many the same battles as Steve as she fought back from a terrible stroke. Steve, the one I know in GA, sees so many similarities in the two stories. Well, last week Georgia-Steve and I were having lunch. He asked some questions about Michigan-Steve’s progress and we had a little exchange that went something like this:

Steve: “Sounds as though your nephew continues to fight the fight”
Me: “He sure does”
Steve: “With everything you know, everything you’ve seen and read and observed, where do you think Steve will be one year from today?”
Me: “It’s hard to say. The doctors have been very up front and Steve continues to make progress. It could be that in a year he may still need ……….”
Steve: “Who do you think you are?”
Me “?”
Steve: “How can you sit there and pretend to have any clue as to where Steve will be. He has proven every one of you wrong with his ability to overcome most obstacles put in his way. So you (pointing at me) are going to discredit his progress by pretending to know how far he will come. The progress is in Steve, always has been, always will be. His strength, his dedication, his will: those are what decide his progress, not you and I guessing what we think will be.”
Me: “I stand corrected”
Steve: “Obviously every case is different and obviously there are a range of potential outcomes, with differing degrees of probabilities attached to each – “all I know” is what I experienced, namely a 70 year old woman who previously could do the NY Times Sunday crossword puzzle in less than 15 minutes to one who couldn’t pronounce the word “the” – then, years later, was able to once again do the NY Times puzzle. My mom had a massive stroke. She was paralyzed from the neck down and on a feeding tube for over a year. We cared for her day in and day out and four years later she danced the night away at my wedding and welcomed her granddaughter into the world. Today – no practical physical limitations, walking, up-and-down stairs, fully self-sufficient, plays bridge, etc. etc. etc. Please don’t discredit Steve by pretending you know how far he’ll come. That his for him to decide”

Stay strong Steve

Uncle Rick

weekend

Steve wants to see "Pineapple Express" this weekend. If anyone would like to come with us, please give us a call or email!

248-568-6091 (Linda)
248-568-6092 (Rob)
lindapercha@gmail.com

Thanks :)

update #85 from Linda

Have just a minute or two between therapies, but wanted you to know that we've watched Steve get stronger and talk more during this past weekend. Not where he was, but so much better than a week ago!

He's also doing a great job eating. He's only allowed a few things, but this is a huge milestone...we can actually take a walk and stop for ice cream!

Yesterday two of his friends were visiting, and talking about a variety of topics. Rob got in the middle of the conversation and was confused about some things. After trying to explain to him over and over and over, Steve shaped his fingers like a gun and pretended to shoot himself. They all got a laugh out of that. Later that night Rob was saying something that was frustrating me, and Steve started laughing and asked, "Do you want my gun?"

Everyone...today is Uncle Rick's 50th birthday!!! Rick - we're thinking of you and hoping your day is wonderful. :)

Have a good day everyone. I'll write more soon.

Love,
Linda

Update #84 from Rob

Sorry for the delay since the last post.

The past couple of weeks are a reminder that sometimes you take a step back. We have had to sit and watch Steve's strength diminish to where standing transfers require much more effort on our part. The swallow test has been postponed again due to a decrease in the control of facial/mouth and throat muscles and of course Steve is not talking as he was before.

As a result of the seizure Steve has to be on Keppra which really affects him. Doctors are planning on increasing the dose, and Steve should have to be on it for 2 years to be safe. We have also discontinued the Amantadine totally as that could also have contributed to the seizure.

I find it so hard to believe that a 45 second seizure could put Steve in such a situation. We know the seizure did no harm to him and that it is the Keppra that is causing these symptoms. The discontinuation of a stimulant and the addition of seizure preventative medicine has really had an adverse effect. The Neurology doctors (we have them now that a seizure has occurred), are the ones making these recommendations. Our rehab doctors are working with us to try and find an appropriate medication "cocktail" to get Steve back on track.

They have extended Steve's stay again, to August 15th.

Throughout all of this, Steve continues to believe he is no worse now than before, and of course his work ethic has not changed. There are also times where Steve seems to be his old self, usually in the evening.
We have been granted permission to try practice swallowing of various substances and Steve has had his first taste of pudding, ice cream, and very small pieces of a Graham cracker - since February.
We have also noticed, that there are times when Steve can hold his head up, walk well in PT , and communicate verbally in Speech. They say that the body can "get used to" Keppra, and maybe we are seeing the beginning of this.
We also have an appointment with the Neurosurgeon that replaced the bone flap, and plan to discuss the latest head CT with him.
You may ask why not just decrease the Keppra? We are told that the consequences of another seizure could in fact be anywhere from mild to fatal. Given that answer, we cannot rush in to anything.
With the help of your positive thoughts and prayers we have made it through worse than this. We will get Steve back on the positive track, believe it!

Thank you all.
Rob

Update #83 from Rob

Hello all,

Wanted to let you know that Steve's' swallow test has been postponed for another week. The doctors think the anti-seizure medication he is on is having an effect on his control of facial and other muscles. We have seen a slight regression also and agree that it is not worth exposing him to the radiation if he doesn't have a better chance to pass the test. His stay has also been extended to August 1st.

The Docs have discontinued the muscle relaxant and one of the stimulants that Steve was on. They plan to try another type of stimulant med that doesn't last as long in the bloodstream.

We are again reminded of the statement that the Neuro people in Bethesda told us: This is a marathon not a sprint. There will be good days and bad. Don't take the "highs" to high NOR the "lows" too low.

As Steve has done in the past, he will adapt to these changes and move on. Just knowing that he is capable of controlling these muscles to a higher level, will allow him to get back to where he was previously, and we will all be here to give support and watch him recover!

Just a note about Mary/Grams, it seems she was so busy making sure the other team members got their breakfast/lunch/dinner etc... she forgot to take care of herself. Her doctor has pronounced her in good health and she is now eating more often and is back to "normal" --whatever that is .....................Can you tell I'm the son-in-law?


Thank you all.

Rob

thursday

OK, everyone...Steve is having a swallow test Thursday AM. PLEASE send positive thoughts and prayers his way!!!

Also, since he has to get up so early on Thursday, we're asking that he have no visitors Wednesday evening. Thanks for understanding. :)

Love,
Linda

update #82 from Linda

Hello! Just a little update...

Steve's feeding tube was replaced on Thursday, at which time they discovered that the old one was misplaced and blocking the opening from his stomach to his intestines, as well as pressing on (and causing inflamation of) an artery. Said these factors could cause nausea and pain, which could explain the discomfort he had been experiencing recently. They replaced it with no sedation, which we would not do again. Steve said it was pretty uncomfortable, but he did OK. We're all glad to have that taken care of!

On Friday they gave him botox injections in his inner thighs. Another uncomfortable procedure, but he hung in there. It's too early to tell if it will help with his walking, but we're hopeful. Rob noticed that he isn't as stiff-legged as he was before, and seems to want to bend his knees (more like you or I would do). I felt that he had better control today of his left foot. But, of course, it could be wishful thinking on our part! We'll keep you posted.

Steve spent a couple hours on his computer today and I was remembering the first time he used it (a couple months ago) and how much better he is at it. He types in his passwords, etc. and can handle things like disconnecting his cordless mouse. Beth made some changes that make it easier to see some things on the screen, which has helped a lot. I also think, in general, that his vision is improving. It's also noticeable when he drives his motorized wheelchair...not so many crashes!

He did a good amount of talking in speech today, which is great for a Monday. He struggles with speech, especially in a setting when he's asked to repeat things. It's much easier for him when he's laying in bed and having a conversation with someone.

Our weekend was nice. Saw a movie on Saturday, and went home for a few hours on Sunday. Steve hasn't been home in 5 months. It was an emotionally challenging day for everyone, I think, but such a good thing to do. Some changes are going to be made to our house, so I'm glad he got to see it before things started happening there.

Adjustments have been made to his meds, which we're continuing to keep an eye on. Sometimes we think he seems weaker or more tired, but are not really sure about that at this point. We'll keep you posted.

As always, thanks for the kind thoughts being sent his way. They mean so much.

Have a good Monday!
Love,
Linda

weekend

Hi! Wanted you to know that we are going to take Steve "out" for a few hours this Saturday and Sunday. So, if you plan to visit him this weekend, please call first to make sure we are there. 248-568-6091 (Linda), 248-568-6092 (Rob)

Does anyone have any ideas about where we can take him?

Thanks, and have a nice weekend!

Update #81 from Linda

Hello! Yesterday was a little crazy...

They decided Steve's feeding tube has to be changed. It's leaking on the outside, and taped to contain the leak, but the time has come for a new one. Nothing urgent. It will be done by threading a guide wire along the one he has, removing it, and putting a new one in. No surgery or plans for sedation.

Dr. Kelly has decided the time has come to use botox to relax Steve's inner thigh muscles. He'll probably inject it one day this week - several shots in each thigh. It takes a week to take effect, and lasts for 3-6 months. They think this will help with his walking and give his outer thigh muscles a chance to get stronger without fighting the ones in his inner thigh, and reduce his tendency to walk with a sort of "scissor" gait.

The neuro doctors visited and made recommendations regarding meds. At this point Steve is considered to be someone who has had a seizure, but not someone with a seizure disorder. Anyone can have a seizure for a number of reasons, and many people do. But his seizure "threshold" is most likely lower due to his injury, and they want to find the right combination of meds to make sure he doesn't have another, and keep him alert at the same time. His new doctors (in rehab) are Dr. Kelly and Dr. Kendall, and they have been wonderful, and are on top of this issue. They changed a few things starting today, and will be tracking Steve's reaction and making adjustments as we go forward.

While all this was going on (and it was all going on at pretty much the same time) we got a phone call from Grams to say that she was in emergency after having some weird symptoms on the way to the car. So Steve and I visited her there, which was quite a sight for the people in emergency! It was pretty funny to have Steve be the visitor instead of the patient...we all had a few laughs over that! They ran some tests, and think Grams was de-hydrated...she's following up with her doctor. :)

Needless to say, Steve pretty much slept through all his visitors last night. He needs lots of sleep anyway, but yesterday really wore him out. It was a good day though, with things getting discussed and resolved.

Have a nice Wednesday, everyone!

Love,
Linda

update #80 from Linda

Hi! Had a little "bump in the road" that I thought you'd want to know about. Steve had a seizure Thursday morning...Danielle heard him making a strange sound, then having other symptoms. THANKFULLY she was there to take care of him and got help quickly. He has been fine ever since. It could have been the result of many different things, but the frustrating part is that they have put him back on meds to control seizures as a precaution. The bad news is that it makes him tired. The good news is that they're working with us to figure out the best times of day to give it to him, so that he can be alert for therapy. We plan on this being just a little bump, considering all that he's been through and dealt with!

Something that we talk about often is that we're always doing things with him in his room similar to what is done in OT...playing cards and other games, using his computer, writing in a journal (thanks, Beth!), throwing a ball back and forth, etc. Today he was wadding up a washcloth and trying to throw it into his garbage can! He is getting really good at all these things. Today Grams said we should get him a nerf basketball hoop, and that is on the agenda for my next shopping trip. Will be good for coordination and vision...we can place it in different spots in his room. He is also getting so much better at driving the motorized wheelchair. There is some issue with his vision (or his brain's interpretation of what he sees) that resulted in him often running into things when driving the chair. Doesn't happen nearly as often now! The other interesting (and maybe gross) thing that happened today is that he said he wanted to rinse his mouth with water and spit it out, like we'd do when brushing our teeth. I gave him a glass of water and a basin, and away he went. The coordination of raising a glass and taking a sip, then swishing the water around amazed us. Not many weeks ago he couldn't even close his mouth.

Uncle Dave...happy birthday! We hope your day was wonderful.

Everyone...have a nice weekend!

Love,
Linda

update #79 from Linda

Hi! Just wanted to let you know that today in PT Steve was able to push himself up to a stand (from a sitting position on one of their tables)and stand unassisted for many seconds while he did things like adjust his shirt and scratch his head. :) :) :)

Love,
Linda

update #78 from Linda

Hello! Steve is working with the OT therapist in his room, so I thought I'd take a minute to update everyone.

First of all, Happy Birthday Uncle Russ!! We all hope your day is wonderful. :)

The biggest thing we've noticed with Steve during the past few days is that he's talking so much more. Complete, long sentences. Not always easy to understand, so we sometimes ask him to say one word at a time, or to air write the first letter, etc. He's writing very little on paper now. The easier it becomes for him to talk, the more he says! Last week they did a massage-type therapy to help loosen up scar tissue around his trach site, and we feel that helped him get his voice going. We'll have a conversation with the doctors about this today, to "keep this ball rolling."

Friday night we went to the Kensington fireworks (thanks for the idea, Russ!) and Saturday to a movie. Both late, but good, nights! When we got home Saturday night, Steve sat on the edge of his bed, leaned over and un-velcroed his sandals, and kicked them off his feet! Beth spent Friday night and she and Steve played cards for a long time Saturday morning. He's getting so much better at things like that. His friend Brian visited last night and Steve asked him about a trip he took. Brian didn't know how Steve found out about it...it turned out that he had read about it on Facebook! We pretty much leave him alone when he's on his computer, so it was a nice surprise to discover what he can do with it.

We're having a little problem with the timing of food, water, and meds which has caused him to be sick a few times. But we have a new plan, so are hoping that this is all figured out.

As I told Brian last night, we are so thankful for the visits from his friends...and he has lots of them. You just can't imagine how good it is for Steve to see you, talk to you, laugh at memories, etc.

Have a good Monday, everyone!

Love,
Linda

update #77 from Linda

Hello! Some new and good things that have been happening...

Steve's discharge date has been extended to July 25th! YEAH!

Patrick (his OT therapist) is working with Rob F. (OT clinical specialist) to look into the possibility that scar tissue in Steve's neck is causing problems with speaking, swallowing, and even facial expressions. Rob F. is convinced that this is happening. They're using massage/pressure to release the tightness of the scar tissue, and it seems that as time goes on they'll show us ways to help him, and show Steve ways to help himself. Today they were explaining all this to Steve, as well as explaining the workings of his diaphram. They offered encouragement that they are aware of the challenges he faces, and are going to figure this out and help him get well. His life will be so much nicer when the swallowing issue is resolved!

Patrick is also working with Steve so that he can wash up, get dressed, etc. Today he had him sitting in a regular chair washing his feet. His nurse went in to get something and almost had heart failure, but we are so glad to see him being given such opportunities/challenges! As of a couple days ago he has also graduated to using a regular shower chair instead of the high-backed one that he could be strapped into that he's used all along. So much easier and more comfortable for him, and an indication of the neck/back/shoulder strength he is gaining.

He's been doing lots of walking in PT, needing less support all the time. Today they had him side-stepping, and yesterday using his right hand to bat a balloon back and forth with a friend while standing up. Jason (PT) said he's noticed recently that Steve can relax/unclench both of his hands better than he could even a few days ago.

Uncle Dave and his family stopped by to visit last night. Dave had a moment alone with Steve to share some words of encouragement with him, and to tell him how financially amazing the golf outing was. Out of the corner of my eye I could see Steve's reaction and wished I had a camera so that all of you could see it, too. He couldn't stop grinning. It's hard to think of the words to describe his reaction, but I think it was partly shock, partly thankfulness, partly pure joy, and partly relief (from financial worries he had on his mind). A perfect moment and a wonderful mental boost for him. From the bottom of our hearts, thank you all.

I hope life is good for all of you!

Love,
Linda

Update #76 from Rob

Hello everyone.
This is just a short note to advise you all on some nice things that happened this weekend.
After a hard week in PT where we have seen gains in strength, Linda and I decided to get Steve out of the Hospital again. We loaded him into our van and took a drive around Ann Arbor.
We showed Steve the renovations being done to the "Big House", his old haunts like Church Street, and the airport he flew in to......what seems like so long ago. The bouncing caused by the Ann Arbor streets caused a slight upset stomach, so we cut the drive short after about an hour and a half. We figure we must have had him reclined a bit too far. All and all, it was a great day. Steve's ability to get in and out of the van shows just how far he has come.

Sunday night was "movie" night. We again put Steve in our van and met Beth at the theatre where we watched "Get Smart". Seeing Steve react to the funny parts and sit there with us like nothing ever happened to him, was good for the whole family. He tolerated the van ride without incident. When we went to get back into the van, Steve decided it was time to get in like he used to. He put all his weight on his right leg and put his left foot and leg into the van and pulled himself into the seat just like anyone else would!!

It occurred to me tonight that back at the end of March, just as Steve transferred up to rehab, Lin and I used to hear doctors say, " What Steve has going for him is his youth and intelligence. What he has against him is that it has been six weeks since the accident and he is not making much progress". Well.............. it has now been just 4 months and 2 weeks since Steve was hurt and look at him now!! As we helped him climb into his bed, he looked over at Lin and SAID "please get me the remote" as clear as ever.

Steve is coming back, believe it!!

Thank you all for your support, prayers , and positive energy.

Rob

Hanging out in PT

Hey Everyone,

One of Steve's Physical Therapist took this picture of us this morning in therapy and we all got a kick out of it. Steve walked over to us with the help of his therapists and was practicing his balance by sitting in a normal chair. It cracks us up because he looks like he's just hanging out, having an everyday conversation with us. =)

Have a good day!!
-Danielle

Update #75 from Linda

Hi!

I'm in the day room at the hospital right now while one of our favorite aides (Eric) trains a new aide in the technique of helping Steve get washed up and dressed. After a look of sheer terror, Steve agreed to let them do it! :)

First of all, from all of us, Danielle...have a wonderful birthday! The story of Steve deciding what to give you for your birthday is one that will make me smile forever. I hope your day is beautiful and amazing, just as you are!

Yesterday they decided to extend Steve's stay until 7/11. That's Uncle Dave's birthday! They had Steve walking on the treadmill and around the room with therapists supporting him, but no "walker" and he does better all the time. We contacted New Balance and got advice on shoes...it turns out that they actually had some to recommend for Steve...a less sticky sole, and a boxier style so one foot doesn't hit the other as often when they cross as he walks. We'll see how this goes, but based on yesterday they seem to work better for him.

Just a little reality check...the mom of another patient just came in and asked how Steve is doing. Her daughter is a patient here, too. We hadn't seen her in awhile, and assumed she had moved on to another facility or home. It turns out that she got pneumonia and it did terrible damage. According to her mom, it is "just a matter of time". Please keep Lena in your thoughts and prayers.

I think I'd better head back to see how everyone survived. Everyone...have a wonderful day!

Love,
Linda

Update#74----The Golf Outing---From Rob

This post was moved to maintain numerical order.


Steve and his family had an outstanding day Saturday.

As mentioned previously, Uncle Dave put together a wonderful Golf Outing in Steve's honor. Steve, with some help from Mom and Beth, actually got to try out his putter for awhile. Even the weather cooperated, as it rained while we drove to the course, stopped long enough for 18 holes and started again just as we got Steve back in the van!


When some "life altering" event hits your family, one thing we have observed in particular, is you learn about people. You learn there is support you never knew existed.

You learn your son has aunts, uncles, and cousins who do endless things such as start a blog, give up their time to visit, plan Golf Outings, (Dave, bring the truck over now!), and a Grandmother that simply cannot stay away from the hospital!


You learn your son has true friends that visit him consistently and those who cannot visit, post
their support and prayers on the blog.


You learn your son has a girlfriend whose family shows their support in so many totally unexpected ways. Relatives, some who have never met Steve, donate their time, energy and dollars in support.


You see complete strangers sending donations, so that for instance, a new car could be won for a hole-in-one and so possible medical expenses will be offset. And you see 112 golfers show up under the threat of thunderstorms to make the Golf Outing a success. In the mix of these players there are, again, people who have never met Steve, but who have learned about him from family members. People from the Arena Energy Foundation, Behler-Young, Federal Mogul, Knology and Timkin companies for example.


And last but certainly not least, you see that your son has two young women in his life that are without equal, Beth and Danielle.


Thanks to all that attended the Outing and who continue to read this blog.

Have a great weekend.


Rob

Update #73 from Danielle

Hey all~~
Here's a quick video of Steve walking without the standing prop! He's gaining more and more strength and doesn't need as much support around him. He's also doing a much better job at keeping his head up and shoulders back...GO STEVE!!!

PS: Thank you from everyone who contributed to yesterday's event. It was a huge success, and it was so great for Steve to see all of you!! Until next time....

-Danielle

update #72 from Linda

Hello! Today was a good day. As Rob mentioned, Steve has been struggling with acting weak/tired for the past few days, which makes therapy frustrating for everyone. The doctors eliminated one dose of the muscle relaxant per day as of Tuesday afternoon, and that seems to have made a big difference. He did a great job today with transfers (and there are lots of them in a day!), and in kicking his left foot farther forward while walking in PT. The PT therapists had the doctors watch Steve today to see if they should use botox injections in his leg(s) to reduce tone, but the doctors want to keep working on strengthening and stretching (we also have things to do with him at night) first. We are very glad to hear that this was their decision.

Steve continues to work hard with Patrick in OT, and is now also working with "Rob" who is a clinical specialist in that department. Today they worked on swallowing (this is also being addressed in Speech)...Rob discovered that if he held his hands a certain way on Steve's chest and throat he could talk/swallow better. This is probably due to scar tissue from the trach limiting movement of some muscles in that area. Rob said it's not something that's corrected surgically, but will improve as chest, shoulder, etc. strength improves.

They gave Steve a motorized wheelchair to try out. In no way are they giving up on his walking...this will help him hold his head up better, and also help with some vision issues. Steve steers with a joystick. Someone can walk behind him and use handles to help steer if needed, which happens often at this point. Today I wasn't paying close attention and he hit (and knocked off the track) an automatic door. Luckily Uncle Don was there to fix it and save the day! Good thing, because I think Grams was about to strangle me. :)

After therapy and spending some time outside today, Steve used his computer for several hours. You or I might spend 15 minutes doing what it took him hours to do, but I was totally amazed watching him. He is incredibly patient. A doctor from neuro-psych spent time with him today and also came to the conclusion that he's handling his situation well. One of our goals is to get him out of the hospital more. PT will be working with us to teach him to transfer to our car so we can take him for rides. In the meantime, we're taking lots of walks (and finding out just how hilly Ann Arbor is!).

Have a good Friday, everyone. Please hope/pray for nice weather on Saturday!

Love,
Linda

Update #71 from Rob

Hello everyone, hope all is well.

The first great bit of news is LINDA IS BACK! Our team is whole again just like Steve's' head. Steve can now have his Moms' undivided attention.

Steve's head and side pain from surgery have dropped to a level 2 and 1 (10 = worst) respectively. It won't be long before these are just a memory. Headaches are not totally gone yet but have greatly reduced just as we hoped they would. Steve has not required any pain relief meds for the last 4 days.

We have noticed that Steve does seem to be tired later in the day. Although he won't admit it, we and his therapists believe that he is fighting to stay awake at certain times. On one occasion, we asked him to close his eyes for 2 minutes and we also covered his eyes. He fell into a deep sleep in 30 seconds! This, coupled with the introduction of a muscle relaxant seems to have weakened Steve. We consulted with the doctors and decided to drop the second dose of one of the stimulants Steve is receiving. Our thoughts were that it may be preventing deep sleep overnight. We will also closely monitor the effects of the muscle relaxant and maybe alter that dose as well.

The therapists in OT are working to restore mobility to Steve's left arm and hand. They have used low voltage electrical stimulus and Steve is now able to relax his fingers and arm more easily. My greatest fathers day present to date was seeing Steve actually turn his left hand palm down and back on his own!

They have also noticed that Steve is commanding the muscles that control his upper body correctly, but they are too weak to work adequately. More strengthening exercises will be done to correct this.

Somehow while working two jobs, Steve's Uncle Dave has managed to put together a Golf Outing in Steve's' honor. This outing is complete with a REAL 2008 Ford Mustang GT500 to be given to the first hole in one, Sponsors for the holes, a Las Vegas hole, Putting contest, T-Shirts (Thanks Dennis) and the list goes on..........and over 100 entrants. This was to be kept secret from Lin and I, but from what I have been able to learn, Danielle's Dad and Uncle have been quite involved also. To put this in perspective, it has taken Dave over 2 years to get his truck over to my house so I can fix a leak, and now he does this!

Steve is blessed to have so many people pulling for him. Our deepest Thanks goes out to all that have planned and decided to participate in the Golf outing, as well as to those that read this blog.

Rob

update #70 from Linda

Hello! I hope all is well with all of you.

A few big things that have been happening with Steve...

Laura is now in charge of his swallow study/therapy, and has given him tiny spoonfuls of water and chocolate pudding/milk mixed together to get a feel for the swallowing issues Steve has. She said she'll take him next week for more extensive tests to get a better feel for things, and to get him on the road to eating again. You can imagine how exciting this is for all of us. It may take some time, but we're so glad things are moving along in this area.

Steve is now assigned to "Patrick" for OT and we're very excited about that. Patrick has worked with Steve before and is pretty aggressive when it comes to therapy; Steve enjoys working with him.

Pivot transfers make life so much easier...no more sling/lift! Rob has been "cleared" to do them, too.

Steve's headaches have all but disappeared after his surgery and recovery from it. Such a huge relief.

Things are rolling along!

Take care, everyone.

Linda

Update #69 from Danielle

Hey everyone!

Steve has been very entertaining lately. =) He often joins in on conversations by talking, which is becoming more and more understandable. He's starting to 'talk' with clearer syllables and he's using his mouth to pronunciate words much more. It also seems as if he doesn't have to concentrate as much to make his voice than he did before. If for any reason we cannot understand what he's trying to say, he usually resorts to 'air writing'. This has become extremely useful and he even tries to say the letter as he's writing it. He's so determined!

He also continues to improve in Physical Therapy, (which is evident by his postponing discharge date!) It's very evident that he's gaining more and more strength as each day passes. It definitely doesn't take as much effort from others to help him stand either. We watch in amazement as he puts more weight on his knees everyday. It's by far his favorite thing to do. Occupational Therapy has also helped with his 'standing strength'. They have a standing prop that doesn't allow him to walk but helps him practice standing by forcing him to hold his whole body up in the correct position. He used this on Friday for a whole 15min! It's still difficult for him to hold his head up for a long period of time, but there's no doubt he's improving with that as well.

Speech has probably been the coolest therapy lately. We have been noticing that when Steve doesn't 'think' about what he wants to say, he can say it. But as soon as he is told what to say, you can just tell by looking at him that he's trying so hard to do so...and at times it's very difficult. Even with small commands involving his mouth are so easy if it's an automatic response command. For example, if I put a tiny sponge dipped in water in front of him, he'll open his mouth. If I ask him if he wants a little kiss, he'll pucker up. But, if we just ask him randomly if he can open and close his mouth...it takes some time. It's kind of a strange thing to completely understand and grasp why this happens. Rob realized this, however, and started to ask Steve question's that had an automatic response answer. For example, 'Peanut Butter and ___' , 'Stop and ___'. He said every single answer to these (about 3 pages worth!) with Rob and with the speech therapist. The speech therapists are all very excited about this!

He's had a pretty busy weekend already. Because Steve was technically readmitted into the Rehab floor from Neuro, he is considered a new patient. All of the new patients have therapy on weekends for about 3 weeks. So between the many visitors (which have been fantastic) and therapies, he's had a very entertaining weekend so far!

Hope all is well with all of you, and I hope to post another video of Steve's progress in therapy very soon!

-Danielle

update #68 from Linda

Hello! I just got home from the hospital, and wanted to take a minute to share how well Steve is doing. He's back "home" in rehab, with all his pictures and other stuff in his room, the remote he likes, and the medical people who are his biggest cheerleaders. Rob figured out today that if he gets one pain pill every three hours it controls the pain but keeps his head clear for therapy, etc. He had a full day of therapy today and handled everything well. Rob said he actually had a fantastic day in PT. They also extended his stay until June 27th!

Beth, Steve, and I had a couple hours together tonight, and we had lots of laughs. It was so nice. Steve communicated through a combination of talking (not easy to understand, but we're getting better at it), air writing, hand signals, and writing on paper. He told a funny story about someone in PT, talked about Carl the lobster, and planned ways to shop for a birthday gift for Danielle (one idea was that he could sit in his wheelchair and hang onto a car while we drove him to the store!). I told him we need to write a book about this experience, and he said that Carl needs two chapters! I remember receiving a note from our cousins Ken and Kathy awhile ago, and they said they looked forward to the day when Steve would wake up and be Steve again. It struck me tonight that, in so many ways, that is happening.

I hope life is good for all of you!

Love,
Linda

surgery update #5 from Linda

Tonight we gave Steve a mirror to look in and he said "I have a whole head now!" :)

Surgery Update #4 from Rob

Just wanted to say that Steve should be back in Rehab today, June 3rd. His pain is decreasing to the "six level" and pain meds are not needed as often. It was quite a new experience for him, as well as us.

Steve seems to be able to ignore the pain he feels unless asked about it. I know the nurses are so pain conscious, but I sometimes wish they would let Steve tell us when he needs the meds. This is contrary to the nurses' training however as I know they want to stay "ahead" of the pain, so we do not get in the way of this.

A Neuro PT therapist came in to the room Monday and we got Steve out of bed and into a recliner chair, by doing a pivot transfer. She also gave us a list of range of motion exercises we should do 3X a day. Steve indicated that it felt good to stand up and get "out of bed" so we let him sit there for a couple of hours. We plan to now coordinate our exercise efforts with those of the therapists.

The head and abdomen drains were removed Monday and the bandage also. I'm glad we saw the incision and the staples in Bethesda first. It is a bit unnerving to see it all again. The surgeon came in , as well as a host of other doctors and all said Steve is cleared to go back to rehab. The surgeon had a bit of fun with Grams, the conversation went this way;

Grams: Doctor, how many titanium plates were needed to attach the bone flaps.
Doctor: Oh lots!!!!................ I didn't count them but the nurses do so we can charge for them!!

When he left, I sincerely thanked him again for his efforts and he said" Your welcome---anytime".
I said doc, we are not planning on doing this Again!

"Sick" humor??

Through the "fog" of pain meds, Steve still seems to be more aware than before and it is pleasing to know that all that is left now is recovery. No surgery hanging ominously over our heads.
Danielle is back from a short trip and it is nice to see her and Steve communicating again.

Once back in rehab, we will get back to the business of therapy and visitors.
Thank you all for your help in getting past this step.
Rob

another surgery update from Linda

Hi! For those of you who were wondering about the "last minute" surgery....we thought we had an appointment to discuss possible surgery with neuro surgeons at noon on Friday. Thursday AM we found out that surgery had, in fact, been scheduled for 7:30 Friday AM! A bit of a scramble to get our bearings, have questions answered, and get x-rays and CT scan for Steve. But everything fell into place and we didn't really have time to worry, so it all worked out for the best.

He's been in heavy duty pain, both in his head and his abdomen (where the bone flap was stored). On a scale of 1-10, he came out of surgery reporting a 10 for his head. They kept him pretty drugged up, but his head seemed to clear a bit around 2:30 this morning. After that we could alternate pain meds (rather than double dosing him), he could write notes, was more patient, etc. I left the hospital a couple hours ago, and he reports head pain of 8 and abdominal pain of 7, which isn't great but is a big improvement. They plan to take the abdominal drain out tonight, and the head drain and head bandage (which is huge and tight) tomorrow. They're keeping him in the ICU again tonight because of the head drain. But we have watched him get better and better as the day went by, so I'm sure he'll be up and around before we know it. His PT (Tim), Speech Therapist (Laura) and Nurse (Christy) all came by to visit...so nice of them and encouraging to him.

One more huge step on the road to recovery!

Take care!
Linda

Surgery Update from Rob

Steve's surgery went very well.
So well that he came out of the anesthetic and hour and a half early, in recovery. His head is wrapped tight and something is bothering him in his right ear, (like an itch you cannot scratch), but otherwise he is moving everything. He wrote a very " expletive deleted" note that indicated his displeasure. Can you imagine Beth guessing every letter as Steve wrote, and spelling "Get the f..u..c.............. thing out of my ear!!!" Positive prayers and thoughts worked again!!!
More to follow.
Thank You All
Rob

surgery

Lots of prayers and positive energy, please...Steve is having surgery to replace his bone flap tomorrow (Friday) morning!!

Golf Update

Good Morning to all,

With all the advancements that Steve has shown, I feel funny about putting this post in, but I did want everyone to know of an upcoming deadline. First of all, thank you to all who have responded in so many ways to Uncle Dave's golf outing efforts. June 21st will be a great day. My only message is to remind everyone that May 31st is the deadline to register. Many verbal commitments have come in, but Uncle Dave is in need of firm commitments, either by contacting him directly or submiting your entry fee. Much has to be done in the days that follow May 31st, and a firm headcount is needed by course management in order to set up for a smooth running event. There, I'm done, and again thank you to all for your support of this wonderful event.

Sincerely,
Uncle Rick

PS: Uncle Dave can be reached at perk11435@yahoo.com for any additional questions and/or commitments

update #68 from Linda

Hi! The most exciting event today was that Steve walked using the "hard" machine once around the room in the morning and then again in the afternoon. I heard Tim asking the other therapists if they were giving him much help, and they said they were not. So, Tim and Mike each held onto one side of the gate (gait?) belt (around Steve's chest) and he walked about 10 steps that way - without holding onto anything! His knees were shaky and his feet weren't perfectly aligned, but he was walking and he was smiling, as we all were!

A friend of mine suggested "pixie sticks" as something to put in Steve's mouth and have him move it around, then swallow. Our OT therapist thought that was a good idea, and did it three times this morning. In the past this has been done with ice chips, which bothers his sensitive teeth. Pixie sticks were such a good idea, and his therapist said he handled it very well! He was also happy to taste something after all this time. :)

In speech the therapist read three words, had him write them down, then asked him to answer several questions, then write the words again. At that point I was struggling to remember them, but Steve did. Then she asked several more questions, and asked him to write the words AGAIN. Honestly, I couldn't remember them at all! Steve, however, had no problem. Amazing. They also sing songs sometimes and have Steve join in if and when he can. Today the therapist sang "happy birthday" and Steve said "Danielle" very clearly. He has a few weeks to practice, but it was a good start!

We had lots of company this weekend...thanks SO much everyone! Steve also got to spend time outside and loved it.

One more thing he was able to do this weekend was to type a note on the computer and send it to a friend, for the first time since his accident. A very short note which took a very long time to type, but a huge accomplishment!

I hope everyone had a nice Memorial Day.
Thanks for everything, and take care of yourselves!
Love,
Linda

Lobster Story (from Beth)

Hi guys,

I know I've kind of been the absent blogger lately, but I just wanted to quickly share one funny story about Steve that happened this morning. So last night I stayed over at the hospital with Steve, and this morning he woke up early and wanted to watch some TV before getting in the wheelchair, so we turned on ESPN. A couple of minutes into the show (which was about deep sea fishing) a commercial came on for Red Lobster's "jumbo shrimp buffet". I wasn't really paying attention, but then I heard this voice.

"Yummmmmm...."

I looked over and Steve was staring wide-eyed at the screen. I immediately felt terrible, and asked Steve if he wanted me to change the channel. He said no, and then signaled that he wanted to write something. So I got him a pen, and he wrote,

"No matter what I watch, I only see the Red Lobster commercial."

This would have been really sad, except that Steve was cracking up and so was I. He then wrote that he sees the little lobster from the Red Lobster logo everywhere: hopping around the room, hovering up by the TV, sitting next to him in bed, etc. He wrote that when he gets out of the hospital, the first place he's going to go is Red Lobster.

I was a little concerned about Steve's unending series of lobster visions, so I tentatively asked him if his friend the lobster had a name. And then out loud, as clear as could be and in a very serious voice, Steve said,

"He told me his name was Carl."

And then he cracked up again.

So even though Steve hasn't had any food by mouth for over three months now, he can still laugh about it, which to me is pretty darn amazing. And surely, as soon as he gets out, the first place we go will be Red Lobster so we can visit Carl and his little friends, the shrimp. :)

Update #66 from Linda

Hello! Just spoke with Rob and he said Steve had a great day in therapy. He did two laps on the "easy" machine that you saw in the video, and two laps on the "hard" machine. I haven't seen it, but apparently he has to support more of his body himself when walking with it. In Danielle's video, you can hear someone telling Steve to hold his head up. He hears that all the time and it's not an easy thing to do. They are looking into getting him a neck brace to help with this, so that his efforts can be more concentrated on moving his legs, etc. Also in PT, they're working on having him move from chair to table, etc. by standing up, moving his feet, and sitting down. I have no doubt that we'll soon be able to use this technique in his room; right now all transfers have to be done with a sling and a lift machine...pretty involved. What ends up happening is that you plan ahead to make as few transfers as possible, and he ends up spending lots of time in one place. When he can handle "pivot" transfers it will be so much easier for him to move around, and make his life nicer.

They've added a new med that helps with "tone" which is part of the issue with his left arm. It was started Tuesday night and yesterday his arm was better, but it seemed like the rest of his body was also more relaxed...not necessarily a good thing! Today was better, though. It's just a situation to keep an eye on and possibly adjust dosages.

His tentative discharge date in Rehab has been extended to June 18th! That's a result of his hard work and the progress he's showing.

Our current big issue is in regards to having his bone flap reattached. There are various opinions about this, and we're meeting with neuro docs on the 30th to decide what's best for Steve.

A swallow test is scheduled for next week. This will be interesting. We are so anxious for Steve to move along in this department, and be able to drink and eat. Last night he was sitting in bed, Beth held a cup of water, Steve held a "sponge on a stick" and he was able to dip it in the water, put it in his mouth, and swallow the water. Did it over and over. My job was to hold his head in the correct position so the water didn't go down "the wrong pipe". No problems at all. But if the OT therapists ask him to swallow, he says he can't "swallow on command"! Please say a little prayer about this. :)

Beth has helped him escape the hospital on two occasions, and he's had a blast. She has none of the parent fears like "what if his wheelchair rolls down the hill?" or "what if he gets too cold and winds up sick?" Both of them just laugh this off, roll their eyes at us, etc. Thanks, Beth! It does wonders for Steve emotionally.

The other thing that does wonders for him is to have his friends visit...remind him of good times and funny events...make plans with him for the future. We know how busy you all are, and how hard it is to see someone in the hospital, but your dedication to him says so much about you. So thanks from us and from Steve.

From all of us...have a nice weekend!

Love,
Linda

Update #65 from Danielle

Hey everyone!

As you know, Steve is now taking steps on his own in physical therapy. He is supported with a standing prop on wheels with the therapists by his side. It can be a little hard to picture this, so I decided to take a video of him this morning to share. He continues to amaze and impress me everyday with his full determination and patience. Go Steve!!! =)

PS: You may have to tilt your head to see the video more clear. Sorry!

Update #64 from Rob

Hello everyone.



Steve continues to do well in Physical Therapy and his "strolls" around the room are becoming a part of every session. The fact that he can do this at all is testament to the positive thoughts and prayers being sent his way and to his own will to recover fully. His determination seems to lift the spirits of all in the room, patients and therapists alike. We hear comments like "there goes Steve again, an inspiration to us all". I sincerely do hope that his efforts serve to bolster not only Steve believing in himself, but others that watch him believing in themselves also. There is so much sorrow in that room. There are those that have little support, and have to go through therapy alone. Please take a moment and wish them best of luck too.




Steve also has made gains in speech. Lin and I thought we would shake up the routine a little by having him do the last speech therapy alone. Turns out all it took was to have Aunt Gail sit in. Steve was able to verbalize, "Hi Mom, Dad, Beth, Grandma, Aunt Gail " and of course "Hi Danielle". He also agreed with his therapist, Laura, when told what he had just done was "amazing" by repeating the word. He also learned to "air spell" and informed Laura and Aunt Gail that the team the Wings are playing is Dallas, by forming the letters with his right hand as if he was drawing them on an invisible chalkboard.


Another speech therapist worked with him Saturday and had him saying the names of the objects in the room. He verbalized items like "flashlight", etc. and was able to tell the therapist the name of his girlfriend clear enough for her to understand it. (She had never met Danielle nor knew her name).




The X-Rays of Steve's shoulders showed no concerns so further stretching and therapy should not be a problem. Glasses should be here next week.




The headaches continue but do not deter progress in therapy. There are thoughts that they may be the result of atmospheric pressure on the brain, due to the lack of the 'cushioning' of the cerebral spinal fluid (CSF) in an enclosed cranial cavity. What this means is it may be time to replace the bone flap. Lin and I have also made the doctors aware of the pain Steve has when he coughs. It appears that the bone flap may also be the cause of this as the area Steve points to when the pain occurs is on the edge of it. Whatever the decision, when you look back at what Steve has been through, this is merely a bump in the road to full recovery and has to be done at some time anyway.



On a lighter note, he no longer needs the TV remote he was given by rehab engineering...he can handle the regular remote now that his vision, strength, and coordination has improved. A definite lifestyle improvement! It also gives him access to the nurses' call button. Even though someone is always with him, we can now ask him to push the button...it's one more little step to being in control of things in his life.



Yesterday he was sitting in the recliner in his room and wrote that he was sliding down too far. Lin and her mom were there and talked about getting someone to help boost him up. Steve heard this and kicked the pillow out from under his feet, Lin held him under his arms and lifted, and he was able to push himself up and back into a more comfortable position. This may sound like a little thing, but it is really a huge improvement in his life as he loves that chair and keeping him in a comfortable position has always been a challenge!

Wishing you all the best.
Thanks,
Rob and Lin

update #63 from Linda

Hello! Steve walked today. I can hardly believe I am able to write those words, but it's true. He supported his arms on a sort of tall table on wheels, held onto the handles, and started walking. The PT people told him what to do - "step forward with your right foot, lock your right knee, step forward with your left foot, etc." After a couple minutes of this he just got into the rhythm, and slowly walked two thirds of the way around the room! The place was going crazy, from PT people to doctors to other patients. Amazing.

One of the other patients (and one of Steve's biggest cheerleaders) is a man named Ron who lost an arm and a leg in a motorcycle accident. He's pretty loud and very funny, and Steve loves being around him. Today Ron told me that when he was hurt he just couldn't believe that he was the person laying there so injured. But when his friends and family surrounded him and supported him, it helped him come to terms with what had happened to him and made him believe that everything would be OK. It was interesting to hear that from the perspective of someone who had been through such a challenging situation. I'm sure Steve is thanking every one of you for your support and your love!

After therapy we got on the computer, which we had done before without much success. But this time he was able to read a couple messages (from his friend Ryan and from Uncle Rick) and could maneuver the mouse a little and click on a few things on Facebook. I think part of his success was due to increased control over his right hand, and part was due to better vision. His right eye is open so much more now and tracking better He also decided to wear his glasses even though they're uncomfortable. I'm sure that helped.

Speaking of glasses, someone from the Kellogg Eye Institute in Ann Arbor is coming tomorrow AM with a selection of frames and they're going to make him a new pair. We were able to track down his latest prescription...he had his eyes examined last fall in Las Vegas when he lost his contact and didn't have any spares...a long story! But that place faxed us his prescription, the Kellogg people were kind enough to bring frames to the hospital, and Danielle (yeah!) is going to help him order his new glasses. His vision problems could involve more than just glasses, but it's a good first step.

The doctors decided to x-ray his shoulders today to see if bone spurs might be forming in his left one. It gives him significant pain which could be "tone" - something connected to his brain injury - or it could be something else. Just checking this out. We'll let you know the results.

Goodnight, everyone, and take care!
Love,
Linda