update #82 from Linda

Hello! Just a little update...

Steve's feeding tube was replaced on Thursday, at which time they discovered that the old one was misplaced and blocking the opening from his stomach to his intestines, as well as pressing on (and causing inflamation of) an artery. Said these factors could cause nausea and pain, which could explain the discomfort he had been experiencing recently. They replaced it with no sedation, which we would not do again. Steve said it was pretty uncomfortable, but he did OK. We're all glad to have that taken care of!

On Friday they gave him botox injections in his inner thighs. Another uncomfortable procedure, but he hung in there. It's too early to tell if it will help with his walking, but we're hopeful. Rob noticed that he isn't as stiff-legged as he was before, and seems to want to bend his knees (more like you or I would do). I felt that he had better control today of his left foot. But, of course, it could be wishful thinking on our part! We'll keep you posted.

Steve spent a couple hours on his computer today and I was remembering the first time he used it (a couple months ago) and how much better he is at it. He types in his passwords, etc. and can handle things like disconnecting his cordless mouse. Beth made some changes that make it easier to see some things on the screen, which has helped a lot. I also think, in general, that his vision is improving. It's also noticeable when he drives his motorized wheelchair...not so many crashes!

He did a good amount of talking in speech today, which is great for a Monday. He struggles with speech, especially in a setting when he's asked to repeat things. It's much easier for him when he's laying in bed and having a conversation with someone.

Our weekend was nice. Saw a movie on Saturday, and went home for a few hours on Sunday. Steve hasn't been home in 5 months. It was an emotionally challenging day for everyone, I think, but such a good thing to do. Some changes are going to be made to our house, so I'm glad he got to see it before things started happening there.

Adjustments have been made to his meds, which we're continuing to keep an eye on. Sometimes we think he seems weaker or more tired, but are not really sure about that at this point. We'll keep you posted.

As always, thanks for the kind thoughts being sent his way. They mean so much.

Have a good Monday!
Love,
Linda