Hello! Whew!!
We are home, and getting all settled in. Equipment was delivered, bags of supplies all over the house, prescriptions on the counter...it has taken us a few days to figure out where to put things and how to organize our life.
Right now Steve is napping on the couch. We put his hospital bed in Beth's room, and he is getting caught up on sleep. I sleep in there (on Beth's bed) until I get up for work, then Rob moves in and he and Steve get a couple more hours. We are coordinating tube feeding and water through the night, and getting a schedule in place. Some of the equipment is a little different from that in the hospital, so we're getting used to it slowly but surely! We're also improvising (like using a coat tree to hold gravity bags!) which makes life interesting. :)
It is so good to have him here. That says it all.
Steve's therapy schedule is falling into place. He's going to a facility in Ann Arbor, which was recommended to us by people at the hospital. A long ride, but so far so good! They're trying to schedule everything in the afternoon, which is better for both Rob and Steve.
One "glitch" was that he had a seizure Saturday morning, definitely not as bad as the first, but a seizure none-the-less. Rob and I helped him ride it out, and he is fine. Had a few minutes where his short term memory was not working, but it quickly came back. We stayed calm through everything, and never doubted that he would be OK. As his neurologist told us, seizures are a symptom of brain damage, but do not cause it. She is going to put him on a different anti-seizure med, which is unfortunate, but we trust her judgement.
We're so thankful that Steve has moved to this new chapter. He has a lot of work ahead, but we know he's up to it. Thanks for your continued support, prayers and energy!
Love,
Linda and Rob
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5 comments:
Dorothy said it plain and true....
"There's no place like home!"
I have no doubt with being home that good things will happen. After all home is where it all began and sometimes it's just best to start from your roots and grow from there. Keep up the good work Steve...
Love Aunt Lynn, Uncle Russ & Cody
Rachel...Steve received your card today and was so glad to hear from you. Thanks!
So far he's met OT and PT therapists, and Rob said they're very respectful of him, and obviously know their stuff.
Steve struggles with using his voice, so we're always looking for ways to help that. Last night he and I took an hour long car ride and talked about things. That was a good plan, since I can't read his lips in the dark, especially in a moving car! If anyone has other ideas, please let us know.
Good night, everyone...as always, thanks for everything!
Linda,
I was talking to a co-worker the other day and they offered up knowing of a young man who required speech rehabilitation. The individual volunteered at a children’s hospital to visit with kids who were in for extended stays. The kids asked so many questions that it forced the young man to focus on speech in order to answer their countless inquires. He eventually got to a point where he began reading children stories to them. It also provided an opportunity for kids to learn what can happen even if you are careful and what you can overcome if you stay focused and positive, as well as provided the young man an opportunity to see (even though probably not initially) just how lucky he was.
Rick
Linda,
Any help that you need with Steve's speech just let me know. I work a lot with swallowing and have gotten many people from tube feedings to eating regular food. I work in rehab facilities doing just that, during vacations from the schools. Call me anytime at Twin Beach and I will give you my cell.
Carol Schmitz
Wow.... I'm so happy to hear that you are home. I'm sure it must feel great to be there among your friends and family.
Best Wishes,
Mr. Losh
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