Hello all,
Wanted to let you know that Steve's' swallow test has been postponed for another week. The doctors think the anti-seizure medication he is on is having an effect on his control of facial and other muscles. We have seen a slight regression also and agree that it is not worth exposing him to the radiation if he doesn't have a better chance to pass the test. His stay has also been extended to August 1st.
The Docs have discontinued the muscle relaxant and one of the stimulants that Steve was on. They plan to try another type of stimulant med that doesn't last as long in the bloodstream.
We are again reminded of the statement that the Neuro people in Bethesda told us: This is a marathon not a sprint. There will be good days and bad. Don't take the "highs" to high NOR the "lows" too low.
As Steve has done in the past, he will adapt to these changes and move on. Just knowing that he is capable of controlling these muscles to a higher level, will allow him to get back to where he was previously, and we will all be here to give support and watch him recover!
Just a note about Mary/Grams, it seems she was so busy making sure the other team members got their breakfast/lunch/dinner etc... she forgot to take care of herself. Her doctor has pronounced her in good health and she is now eating more often and is back to "normal" --whatever that is .....................Can you tell I'm the son-in-law?
Thank you all.
Rob
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Once again, I can't thank the "team" enough for all their dedication and care for Steve. Just knowing that you guys are with him each and every day speaks volumns. Support is such a positive reinforcement for recovery.
As Rob said, good days, not so good days. We will just keep positive for Steve and for each other. When the day comes that Steve passes his test, we will do a little dance down the halls on Floor #6!!!
P.S. Uncle Don and I still have dibs for the lobster dinner (sorry, Carl).
Love, Aunt Gail
Rob,
OMG! Is that how son-in-laws are to act?? I LOVE MY Mother-In-Law!!
Don,
Please wipe that "brown" stuff off your "nose"!
Thank you for your notes, Jane and Su. :) Hope you're having a nice summer!
Love,
Linda
We are all sending prayers your way so the swallow test is successful.....please keep us posted. Steve is still very much in our thoughts.
Karolyn
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